Focus Areas
Advocacy & Policy Influence
We advocate for policies that support comprehensive healthcare, including early detection, specialized treatment, and access to necessary medications for individuals with sickle cell disease.We engage with policymakers, healthcare providers, and other stakeholders to promote the rights and well-being of individuals affected by sickle cell disease.We also participate in legislative advocacy efforts and contribute to national and international dialogues on sickle cell disease.
Awareness & Education
We conduct public awareness campaigns to promote understanding and knowledge about sickle cell disease, including its causes, symptoms, and management.
We are at the fore front of organizing educational workshops, seminars, and community events to empower individuals with sickle cell disease
We also collaborate with healthcare professionals, schools, and other organisations to integrate sickle cell education into relevant curricula and training programs.
Research & Innovation
We foster partnerships with research institutions, pharmaceutical companies, and other organizations to support scientific research, clinical trials, and advancements in sickle cell disease treatment and management. Promote collaboration and information sharing among researchers, healthcare professionals, and patient communities to accelerate progress towards finding a cure for sickle cell disease. Our support initiatives focused on understanding of sickle cell disease
Support Services
At Sickle Cell Uhuru Trust we Offer emotional support, counseling, and guidance to individuals living with sickle cell disease and their families. We also facilitate support groups, workshops, and educational programs to address the unique challenges faced by individuals with sickle cell disease.
We also connect with individuals to community resources, financial aid, development partners and other forms of assistance to assist patients living with sickle cell.